Hi James, … what is NPNPD …
I was in the audience in Brighton last night – thanks really interesting. I didn’t have a question, more a point to explore – here goes.
I’m 58, I’ve had ADHD all my life, I’ve only recently got the official badge ✅ I’m strongly into the neurodiversity paradigm, it fits v well with the social model of disability and with the formulation of neuroqueer heresies, as in Nick Walker’s brilliant book. I’m also digging into (basic!) neurophysiology as I’m training in hypnotherapy.
So the reframing of ADHD, and other forms of ND, and how our brains are different interests me massively. And, I’m guessing you spot the potential conflicts between that social model/neurodiversity paradigm and the medical, neuro-pathology model of it’s all wiring and genetics etc. Potential, not actual conflict – understanding not value attachment.
I don’t like the term disorder – I suspect though that my views inspire some disorder.
But, I also get your point that the different ways of thinking defo impairs many people’s quality of life. I have dyslexia too, my typos and inaccurate reading are a serious pain – the disability has been 1970/80s schooling, being hit for being stupid, and not actually absorbing info that others could. The anxiety, the PTSD from the years of abuse, have been way worse than shit spelling.
I get it that ADHD has a disorder like impact on many people; I find it hard to focus when that is really needed and yep, I’ve turned up a month early for a flight or all manner of daft, embarrassing, costly things. I’m a civil servant and focus is a need, a value. Some of that is disabling for sure when I’ve a batch of dull options to consider and none of them look great – doing so feels like physical pain.
What is more disabling is the lack of understanding (bless them they may not know how) of many people. It’s a level of misunderstanding that, in the 70s came with being hit for not paying attention and frequently leads to conflicts, to unemployment and, as you pointed out, to prison.
You also mentioned that some people consider it to be a ‘superpower’ and, forgive me if I misread you, I wonder if that makes you puke a bit – it does me. We’ve had to endure so many shiny, patronising badges – special, differently-abled and so on.
It isn’t a sodding super power, but in my view it can be extremely useful and, without the crap attitudes of those in the majority, those people who have the firm view of what is normal and not-normal, it’d be seen to be the asset it has the potential to be.
I’ve worked in the civil service or 33 years and there’s an awful lot of potentially, extremely useful people who are, sadly, afflicted by NPNPD (patience, I’ll tell you in a mo). It leads them, year after year, to consider the same sort of points, to debate and go around the same sort of issues and, to proudly find the same ‘solutions’ that, unsurprisingly, don’t work just as they didn’t 5, 10, 15 etc years ago … 33 years I’ve been witnessing this … They are so focused… Help them…
When I got my ADHD assessment I spoke to my ‘big’ boss about it. She wasn’t surprised as I’m always driving them mad suggesting things like ‘why don’t we look more broadly’, ‘why are we excluding all of these other important factors’, ‘why do you all get paid to run in a straight line with blinkers on when obviously, the answers are not to be found on a continuum between the only two points you insist we consider!’
I get angry about it, I had a breakdown about it earlier this year – “why – won’t – you – just – won’t – fucking – listen” I wrote in a furious email to the senior management as I went off sick for 2 months.
I get warnings about it, I get friendly reminders, I have software, and workplace adjustments that’d be the envy of most people.. but still, I don’t focus on the information at hand and work within the prescribed boundaries..
At least, she (big boss – and friend) said something like, you must now be pleased to have the diagnosis, to have it confirmed that it’s not your fault – it’s how your brain is wired, and it’s a medical disorder. We’re all different and we’ll do our best to accommodate you… They do their best, given their (dis)abilities.
Nope I said – I worry for you and for the country we’re failing to run, because you just cannot see how your minds are blinkered by Normal Person’s Narrow Perspective Disorder – NPNPD.
She was upset and annoyed, she said it was patronising to refer to how normal people think as a disorder. I said it’s normal to think as they do, and it’s normal to think as I do, but my way is labelled as a disorder and her’s is not. She got the point.. possibly, it’s hard to tell if people with NPNPD have really got it all, or just the bits they narrowly focus on.
Yes, the spirals I go off on, the webs I get wrapped up in, take ages to untangle, but that isn’t a lack of focus. It’s not even hyper focus.. I reckon that, give ADHDers more time and Way less stress, and better ways to keep track, and we’ll mostly gather the info we need and when we have, we’ll have a way better grip than most people.
And it’s true, I seriously struggle with keeping a grip of it all. But what I need is to have some people with NPNPD to log all of that stuff, to keep track, and not be the ones setting the limits on the focus and not telling me to stop making their lives hard by pointing out that there is some other factor that needs to be considered or X plan will just fail – again.
As, just as ADHD is not a disorder, having a normal (in terms of commonality in the population) way of understanding the world, NPNPD, is not a disorder. As Aude Lorde said ‘The Master’s Tools Will Never Dismantle the Master’s House’. I seriously think we need to get out of the medical model neuropathology paradigm, yep, your brain diagram is cool, just as it’s good to know what the medical needs are of any of us, or how we work.
The issue though, as it is with the social model generally, is to remove the barriers and to be cognisant of the risks of chucking medical titbits at those who see us as ‘sick’. Some in the audience are the ‘nice’ ‘bless them’ people who assess us as deficient and, perhaps as a symptom of their NPNPD don’t get it that their tests are, as you pointed out, too long, missing girls, missing different social expectations, muddling a wife focus with not focussing.
Fuck the ‘superpower’ BS – it’s more like Wide Focus and Attention Awareness Outlook or some other thing, I leave the letters to the non-dylexics. Yes, it requires understanding not discrimination, yes, it can be hard and we need support, but no, it’s not in itself a disorder as it the subject of attitudes that disable us rather than enable us.
So – I reckon – we need to shift the issues away from the poor-us and more onto, what are those with NPNPD in charge of the agenda doing, how is it they are driving determinedly in what may be the wrong direction. Is it just because they are better at writing an agenda and booking the room and the tea and biscuits?
All the best, Phil